We held this fundraiser because Alicia is in need of a Rifton Blue Wave Toileting System, an adaptive stroller and a communication device. Because she is non-verbal, we need to be able to teach her to communication with her hands by using a device. We are considering an iPad since there are many commmunication applications out there for it that would be appropriate for Alicia.
So I would like to brag on my family and friends that helped out for the fundraiser. I have the best family and friends in the world! So many of my friends volunteered their time to help make posters, work the bake sale, help us take care of Alicia so she could be there with us during the entire event, so many people baked goods for us, people helped set up, people helped break down and pack it in, and people were constantly asking me to put them anywhere I needed them. I has so much help that it completely overwhelmed me. To see just how much others care for me and my family humbles and overwhelms me at the same time. It is nice to see that there are still people out there that do care and want to help a family in need.
We don't sugar coat what we go through on a daily basis with caring for Alicia. We have to take it day by day and sometimes it's hour by hour. To be brutally honest, there are days that Rett Syndrome just sucks! But we do it because we love our children and they are perfect to us.
